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Rare Disease Innovations Institute

Durham, United States (US) · Health and Medical

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Rare Disease Innovations Institute is a Durham, North Carolina-based global non-profit dedicated to improving the lives of individuals affected by rare diseases.We serve the rare disease community by providing policy, tools, and data to accelerate diagnosis, enhance quality of life, and enable access to treatments.Our approach centers on creating a unique toolkit that empowers states to establish effective Rare Disease Advisory Councils (RDACs), fostering collaboration and driving impactful change.

Overview

Rare Disease Innovations Institute is a Durham, North Carolina-based global non-profit dedicated to improving the lives of individuals affected by rare diseases.

We serve the rare disease community by providing policy, tools, and data to accelerate diagnosis, enhance quality of life, and enable access to treatments.

Our approach centers on creating a unique toolkit that empowers states to establish effective Rare Disease Advisory Councils (RDACs), fostering collaboration and driving impactful change. We are committed to building a future where rare diseases are rapidly understood and treated. RDII leverages data integration, prevalence studies, and network analysis to inform our work and support our mission.
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Contact Details

info@rdii.org

Durham, United States (US)

Company Type

Nonprofit

Employees

10-20

Categories

Medical Equipment and Services
Healthcare
Hospital

Awards

• 2026 OpenSee all

Services

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Rare Disease Data & Analytics
Healthcare

RDII provides access to valuable data and analytics related to rare diseases, including prevalence data, network analysis, and newborn screening information. This data supports research, policy development, and patient advocacy efforts.

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