Health and Medical

RDII provides access to valuable data and analytics related to rare diseases, including prevalence data, network analysis, and newborn screening information. This data supports research, policy development, and patient advocacy efforts.

Rare Disease Data & Analytics

Healthcare

Rare Disease Innovations Institute

North Carolina

Medical Equipment and Services

Hospital

A comprehensive toolkit designed to assist states in establishing and maintaining effective Rare Disease Advisory Councils (RDACs). This toolkit provides best practices, resources, and support to ensure successful implementation and sustainability.

Rare Disease Advisory Council Toolkit

Other products/services from Rare Disease Innovations Institute

Rare Disease Data & Analytics

N/A